Thursday, 5 March 2015

It's been a while....

So, about 3 years since an update. Well let's just say, since my last bout of ligh treatment which I had updated on the page, I was clear bar a few pesky spots here and there that weren't of that much bother to me, Until it decided to get worse around April 2013 for reasons unknown, at this time light treatment was again used and I went on my merry way. Now I sit here writing again, having been influence by reading other psoriasis blogs to update yet again, as it has come back with a vengeance...and here's why;

For about 8 years I had been on Methotrexate (MTX) but unfortunately around Christmas 2014, it was beginning to make me feel very ill, especially as I was on a higher dosage of 25MG. On top of that, I had developed Psoratic arthritis in my right elbow also, so it felt like it was no longer cutting it for me.

I was put on Enbrel, which you inject rather than tablet form I had always been used to. I started on 50mg and only lasted 2 weeks before I ended up with the flu (seems the flu jab a few months earlier didn't cut it this year) and my skin completely flaring up. My scalp, face, arms, legs, back and torso have been covered again in what I thought I had under control. It really hit me hard, no matter how many times I tried to stay positive. I was prescribed 25mg of Enbrel along with 10mg MTX for a further 3 weeks (which was up until last week). A visit to my dermatologist and light treatment (UVB) was on the cards yet again, of which I am not into my second week (had my 3rd session today at 29 seconds).

I have also been changed to Cimzia, a drug I have never heard of. I am due to start next Monday though I am still waiting on a patient pack to arrive as the doctor had none (is that a good sign or a bad one?!). That pretty much brings us upto today, Thursday March 5th.

I guess when my skin was clear, I could go about living life normally and not worry about stares, itching and pain from this but not that it is back, it has affected me in a few ways. Thankfully I have a supportive family, friends and boyfriend who support me no matter what, but sometimes I think it may be hard for them to understand just how I'm feeling as none of them suffer the same.

I'm going to try and stay positive, as much as it gets me down, it's not the end of the world. Who cares if people stare, it's not contagious, but educating people on it is. Hoping to upload some recent photos soon to show the extent and hopefully the transformation.

Until next time,
Sarah x

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