Busy, busy......

Again other things have gotten in the way of blogging. Work and life in general has been pretty hectic but I wanted to come on here and share a quick update on my progress. I get asked quite a lot about how I'm doing on Cosentyx, especially from people who have recently started it or are due to start it.

Thankfully, all progress has been good for my skin. All that is left is the discolouration of psoriasis,  no raised skin, flaking or itching! I have been very happy with my progress. It has been very convenient also only having to take it once a month and I'm now on my fourth month.

My joints lately had been feeling better but unfortunetly this week, have flared. I put that down to lots of walking/ standing in work for long periods of time and also my shoes being a bit worn also. I hope it will calm down soon.

I'll have a longer post in "my experience with" series soon so be sure to check back for that.

As always, any questions leave them in the comments below.

Until next time.....

Sarah x

Ch-ch-changes.....

Hello again. Changes have yet again set me back in my progress, and has gotten to the point that my skin feels like it's on fire :(. Even something so slight as brushing against furniture or harsh clothes are making it unbearable lately.

I'm not entirely sure what has brought it on...change in washing powder? Possibly, change in weather? Could be, it has been up and down lately. Stress? I have had my fair share of it again lately. Sickness? It was only last week I yet again came down with a headcold. I've even been thinking the water supply...strange as it sounds but I have been thinking of investing in a filter for the shower head. I simply can't pinpoint it unfortunately. 

I woke up with a headcold last Thursday, the same morning I had a check up appointment with my rheum. He was shocked at how bad my skin on my legs had gotten when I showed him. Even though Stelara seem to be helping my joints, same couldn't be said for my skin. it was time to try yet another different medication.

I was shown two options, one being a tablet, the other being another biologic, Cosentyx. I had asked about this new biologic back in November having heard so much good about it, but it was not available in Ireland. Thankfully, now it is! I couldn't choose anything else, This seems like the dream biologic. 

I was given my patient pack and sent on my way. Due to being on the tail end of a headcold, I haven't been able to start it just yet. I'm looking forward to starting, worried about the pen injection given that I didn't like the Enbrel one, but none the less, if it is to help me it's a case of get over it and just do it! 

Starting course will be two 150mg injections per week (at the same time) for four weeks and all going well after a checkup with my rheum after that time, it would be two injections together every month. I hope to update once I have started, and I'm hoping for good results as most research I've done on it has come up so positive! 

Have you tried Cosentyx? Let me know what your thoughts on it are.

Until next time.....

Sarah x

Winter handbag essentials.....

Welcome back to my blog! Today's post is going to be about my handbag essentials for the cold winter weather. Lately here has been the coldest it has been this winter as it had been very mild up to now. We've had lots of rain, bringing with it, ice in the mornings. So here are my necessities for this harsh weather....

 

Unfortunately with the cold weather, skin can become dry and cracked so I do tend to carry a few bits in my handbag to avoid irritation and the possibility of my psoriasis becoming worse.

Gloves are a great way to keep your hands protected from the cold air. Theses are a pay from Penneys (Primark) which was €1.50 for a pack of two pairs. They are small enough to roll up and store in your handbag or pocket for whenever you may needed. They can also be a great fashion accessory if you want to dress up an outfit. An additional set of hand warmers could also be placed inside of the gloves to make it toasty :)

A recent addition to my handbag is the LOccitane hand cream for dry skin. I was never one for wearing hand cream, as I don't like strong scents on my hands, and while this does have a slight scent it is very much a pleasant one! It was gifted to me in a gift set of mini samples by my brothers girlfriend, who very thoughtfully took my skin into consideration. I have using this quite a bit on my knuckles as I have experienced cracking of my skin in this area. It is a lovely creamy white texture that really rubs into the skin nicely.

  This time of year when along of colds and flus develope, I find it always good to carry a small bottle of hand sanitizer. The bottle picture is from Aldi and costs between €1 and €2. I can be a bit of a germaphobe sometimes as I know myself that with an autoimmune condition that it can be very easy to come down with a cold or flu. Especially when it's the time of year that people are on fitness kicks, no one wants to be sick! Along with hand sanitizer, I also carry a pack of tissue cos you never know when you might need them. 

A longtime favourite of mine is the Blistex relief cream. I find this is fantastic when you're lips are cracked and dry, which unfortunately has been the case lately. I always have a backup of this just I case I might need it. I do like lip balms but nothing seems to be a moisturising as this! You do feel a slight tingle on the lips which I know some people hate, but it's something that doesn't bother me. It is a white cream so does have to be rubbed into the lips well.

Highly recommended by my mother after suffering from a sore throat lately, .  I used to use these when I got strep throats in the past but had since forgotten about them. I was using different cough sweets and cough syrup lately which were not helping, but these were a godsend. I find that after the sweet has gone, that my throat still feel coated with the taste and numbing effect of the sweet. Glad to have these close when my throat is starting to feel sore, and they only cost around €1 to €2.

What items can you not live without in your handbag/ bag to survive the winter? Let me know in the comments below.

Until next time....

Sarah x

New Year, new chapter.....

Greeting from my sick bed....well, couch with a fuzzy blanket and warm fire :) Thankfully I'm over the worst of my cold and feeling better each day. A trip to the doctor this morning, it was decided I didn't need antibiotics and to continue my recovery on paracetamol. Funnily enough my facebook memories today showed me moaning about being sick this day, on two different years...seems to be a pattern. I know that this is going around and I know people who suffered from it recently. Probably from going from bad habits over Christmas to trying to do better again in the new year getting back into routine. On that note also, Happy New Year! I hope you all enjoyed however you chose to celebrate. I did so with family and my boyfriend having a quiet night in, going outside at midnight to see the fireworks over the nearby town.

So today, giving how I'm feeling I thought I'd go through a routine of how I recharge my batteries when I am sick...

Comfort:

It is important to make sure you are comfortable! Whether its being in bed or on the couch, its nice to have comfy pillows or cushions to ease and aches of pains you may have. I found myself suffering from terrible lower back pain which my doctor put down to the virus targeting a weak area of your body. I found myself layer up cushions on the couch and while in bed using my trusty hot water bottle to heat the area. Just be sure not to have the hot water bottle touching your skin, so as not to burn the skin, instead wrap it in a towel or tshirt.

My lovely fuzzy blanket from trusty Penneys has been attached to me most of the week. It warm but also light material if I get too warm. Who can forget warm, cosy slippers!  My pair of choice being sheep ones I received as a present at Christmas.

Sleep

Sometimes coming down with something like a cold is a way of your body saying you need to slow down and recharge. Depending on your age and lifestyle it is usually recommended that we get 8 to 9 hours sleep a night. A good night sleep can help to focus more during the day at work/school. Lately unfortunately my sleeping pattern has been all over the place (a bad habit from Christmas) which may have been part of the reason I became sick. Relaxation plays a big part, even little things like lighting candles or your favourite scent,going for a short walk to get to fresh air into your lungs (love the chill of late cold nights), listening to your favourite music, watching your favourite show or if like myself lately, watching your favourite youtubers.

Medicine

Whether you believe in herbal medicine or the chemist kind, use whichever you find works for you! I found myself using Strepsils sore throat and blocked nose lozenges due to a bad cough I had and later found Fisherman Friend were more beneficially. As a child I always suffered from very sore throats and bad coughs but since I had my tonsils out (10 years this month!) I thankfully haven't suffered as badly, as well as improving my skin when it was at its worst at that time. I had started out using a cough syrup but found it only seemed to make me cough more. Voltarol has been a godsend for using on my lower back! The pain was so bad when it came to getting up from sitting down and standing back up again but this gel really has helped relieve it as it targets the area.

Fluids

This is sooo important! Be sure and keep your body hydrated with plenty of fluids. Water, 7-Up and Tea have been my fluids of choice. One of my goals for the New year is to drink more water. I had a good routine of drinking water daily but fell into bad habits over Christmas.

If needed, seek medical advice

If you feel like nothing is helping, maybe seeing your doctor is the next step. Your doctor can then recommend a course of action, whether it be antibiotics, or even just more rest. It is best to follow the instructions of your doctor and if that doesn't work, don't hesitate to let them know, they are there to help you after all.

I have found myself using the downtime to also make goals for myself for the new year. I'm not one for making New Years Resolutions, simply because I never keep them! So I have written out ideas and steps to go about achieving them, in the form of progression and it has really made me motivate myself to getting better and try to improve my lifestyle as of late.

Anything you would add to the above list? Leave it in the comments below. I hope it has been a better start to the new year for you. Have you made resolutions or plans? I may share mine in a post, I'm planning to keep track of progress in all areas so hopefully a few changes in motion.

Until next time....

Sarah x

 

December Update....

Hi all! Hope everyone is doing well since my last post. I do apologise for the lack of posts as I'm having laptop issues and waiting on a part to be delivered. But on with the update....

So I didn't update through November, which was also due to being busy with work. I had another visit back to my Rheumatologist. I had experienced quite bad stiffness in my elbow in the days leading up to my visit, and unfortunately my skin hasn't been behaving lately. With the winter setting in, it could be down to the changes but it has been fairly mild temperature wise here. 

My rheum did discuss with me about changing medication, to which I wasn't open to. As previously posted about, my current medication, Stelara, is the third different biologic I've tried this year. I was told about a different oral medication I could try but due to being of 'child bearing age' it was not something he would be comfortable putting me on.

We decided that it would be best to give the higher dosage a fairer chance (only one 90mg had been taken at that stage). I was due to take my next dosage the first week of December but due to not being well, I was put on a course of antibiotics and could then take Stelara. I got a steroid injection to my side to relieve the stiffness and pain I had been feeling in my joints and sent on my way.

A week later and I was feeling better, I then waited another 3 days before I took my next injection. The 90mg dosage came as one injection, instead of two, which made life a lot easier. I have become more confident at injecting, considering at the start of the year it was something I felt sick at the thought of but I'm am grateful for having learnt this.

As previously mentioned above, my skin hasn't been agreeing with me lately, especially on my legs, upper arms and lately my scalp. I find scalp psoriasis to be one of the more annoying things, as well as being itchy, you have to deal with flakes through your hair and on your clothes. I have found one or two dots appearing on my face lately as well, so I'm hoping it is not reappearing there but I guess this time I am more prepared for it. Last year when my face was covered, I took it very badly, hated going out in public and felt the need to avoid certain situations. I have found some very good foundations and good application techniques which would help if I feel the need to cover it, as well as becoming a stronger person to be able to deal with it uncovered in public.

Have you found your skin/joints to be flaring up this time of year? What do you find helps?


I hope to update before the year is out, but if I don't get the chance to, I hope everyone has a lovely flake-free Christmas! Stayed tuned for bigger and better to come in 2016 :)

Until next time.....

Sarah x

World Psoriasis Day 2015....

If you didn't know, now you do! Today, October 29th is World Psoriasis day. A day celebrated worldwide by many a Psoriasis sufferer, to educate others, and also to acknowledge how far treatments have come over the years with so many options now available.

I know Psoriasis is something, if we all could choose, we wouldn't want to have it. But there are positives to come from it and for me a bit part of that was how much of a community you will find from fellow itchys. People are so eager to educate as well as share their own experiences and advise when times are tough.

For myself, the Psoriasis Ireland group on Facebook has been so helpful and so welcoming, be it to rant or rave, you'll always find someone who will set you on the right path. There are plenty of forums out their also, as well as other Facebook pages/groups from different countries.

I want to end this by sharing a video by a beautiful little girl named Pearl, who is an inspiration in speaking out about how it feels to live with Psoriasis and deal with it from a young age. I wish I had her confidence. When I developed it at age 17, it was the awkward years, in high school and a lot of focus on how you look. I wish I was a brave as this girl back then, thankfully I have grown a lot as a person since :)

Until next time......

Sarah x

Double the fun.....

I must apologise for the lack of posts lately, there has been a few bits going on in my personal life that I have had to deal with, so I chose to take a break from blogging for a while.

While one issue I was dealing with is something I hope to deal with in a future post, it's not exactly psoriasis related, but stress related....so in a way I guess it is psoriasis related.

To update on my ongoing treatment, I took my 45mg Stelara as usual in August and had a return visit to my Rheum in September. He was happy with my progress, but unfortunately my arthritis was active, in my knee, elbow (which doesn't straightened properly these days) and now my ankle. My ankle had been giving me trouble for a while, and I found an ankle support did help when at work. When I bought new runners to replace my old, falling apart Golas, I found my ankle to be better supported.

With my PsA being active, but my skin coming along well, my rheum decided to up the dosage from 45mg (1 injection) to 90mg (2 injections). I was prescribed one injection to boost me up to 90mg from my old dosage a month earlier. I have been feeling great, my joints feel a lot better in that I have been doing more things that I couldn't do as well in about a year or so. My skin has had its ups and downs, mostly on my right leg but still nowhere near my worst flares.

I am due back to my rheum in November, to see how I'm finding the higher dose. I am due to take my next 90mg on Nov. 21st, all going well. In the mean time I hope to post a bit more often as I have had a few ideas during my blog break.

If you have an suggestions on any topics or issues you would like to see covered, leave it in the comments below :)

Until next time.....

Sarah x

Quick update.....

Apologies for the lack of updates lately, life has been quite busy with work, outings and a friends wedding. I wanted to update on my progress with my skin and my treatment as of late.

It wasn't too long ago I wrote about my experience with Stelara so far. Two weeks ago, I did my third Stelara injection. I did feel it this time, but didn't hesitate for too long because the sooner you do it (once prepared) the quicker it's over with. I had found my skin to be getting worse, but now I do see improvements going forward. There are still some stubborn patches near my ankle that aren't cooperating.

As for my joints, I find that I am not wearing the right shoes for my feet, therefore I do get a lot of pain in my knees and more recently my right ankle. I have also found my right elbow to be fairly painful also, especially when lifting etc. in work. I am due to see my rheum just over a weeks time, so I look forward to seeing what he makes of my progress.

I don't think the recent spate of bad weather has helped either. Do you find your skin/joints acting up when the weather worsens? Feel free to share your experiences in the comments below.

Until next time.....

Sarah x

My experience with Stelara.....

The final instalment of this series, brings up to my final and current treatment, Stelara...

After Cimzia, I was given a month to get it out of my system and then I made the decision to go with my next option, Stelara. This is a 45mg syringe injection. The good thing about this is it has a spring mechanism in the injection, that once it has been distributed, it encases itself within a metal reel and plastic casing. This is a great feature making it safer to dispose without the risk of needless touching of the needle once injected.

I first started Stelara on May 9th, a day after finishing up with light treatment. I found it much easier to inject that previous biologics. After my first time, I did feel a big sick; scratchy throat, slight runny nose but nothing major and it didn't last very long.

Second injection was June 6th, 4 weeks after the first one. Again, similar symptoms as above but nothing that lasted. Two days later, I was off on holiday to sunnier climates. The first two days of sun I found my upper arms and chest to become quite red and itchy which I've recently found out is sensitivity to light, Urticaria. It cleared within a few days thankfully. While on holiday, I safely enjoyed the sun and my skin showed signs of improvement, I was returning home a week later much clearer.

Unfortunately, once I was home a few days my skin flared, but not to the extent it had been. The doctor said it due to coming home to a different climate but also the stresses that we forget about while on holidays. 

It's now two months since holidays and my skin, sadly, has become aggregated. I'm not due to take my next injection until August 29th (every 12 weeks after the 2nd injection). I have asked other about their experience with Stelara and they have said it usually starts working from the 3rd or 4th injection, so I'm holding out hope that it will be the case.

Are you on Stelara? Share your experience.

Until next time.....

Sarah x

My experience with Cimzia.....

Continuing on the series from my previous experience, which was a negative one with Enbrel.

When I went back to my rheumatologist on March 2nd to review my progress with 25mg Enbrel with 10mg MTX, it was decided I would try Cimzia. Now, I had not heard about Cimzia, and thought the next step would be Stelara. I was to start the following Monday, March 9th. At this stage I was already after two weeks of light treatment in order to relieve my skin of the damage Enbrel had done.

Cimzia consists of two 200mg prefilled syringes (400mg in total) to be injected into each thigh, on the same day as each other. This was the starting dose, And I was still on MTX to help make the injection more effective. As it is such a high dosage, it is to be done every two weeks, 400mg for the first 6 weeks and then 1 thereafter.

 

 (Cimzia starter pack - 2 x 200mg prefilled syringes)

A week and a half after the initial injections, I started to notice pink dots around the injection sites on both thighs. The following day, they appeared as large, red, raised patches and felt hot and itchy. Concerned, I talked to my nurse at light treatment the following day and she reduced the UVB due to the reaction and said to ask my doctor about skipping the next session. This was a Friday morning and unfortunately meant it was proving quite difficult to get my rheumatologist on the phone and I gave up when I didn't get a call back. To my surprise, Saturday morning, I get a call from my rheum to see how I was doing. He heard my concerns and advised me to cancel Monday's session to let the reaction fade, and to not take Cimzia any further.

I continued with my light treatment and revisited my rheum where we decided to give my system a break before starting any different, and to think about starting Stelara in a months time as my next option, which is the next and final topic of this series to discuss.

Have you any experience with Cimzia or any biologics mentioned above?

Until next time....

Sarah x

Review: Bioderma

Firstly, I apologise for the lack of posts, life has been a bit busy/ stressful. Unfortunately this has also resulted in my psoriasis flaring up a bit.. But back to blogging....So you may have seen my recent Bioderma haul, well I feel like I've finally had a chance to put them through their paces and to be honest, none have failed to impress me...

(Bioderma BB Cream)

When I first tried out the Bioderma BB Cream, I wasn't too happy after spending the money on it. I applied it with a foundation brush, and it just seem to cake on my cheeks. I had given up on it but decided to give it another try, this time using my Blank Canvas blending sponge. It applied like a dream, covered my redness which tends to be around my nose and cheek areas, it really gave a flawless, even coverage to my skin. I didn't feel the need to set it with powder.

                                           (Before)                                             (After)

As you can see from the above photos, I am a bit tanned on my face but suffer from quite a bit of redness. The photo on the right is using the BB Cream, which as I previously said, really evens out my skintone and hides all the redness on my face. I'm looking forward to using it further and testing its lasting power. It does only come in one shade 'Light' which can be too dark for paler complexions.

The Bioderma miceller water has been leaving my skin so soft, especially when it comes to removing makeup using the product. Due to work I tend to be outside most of the day and exposed to all kinds of weather (which unfortunetly has been mostly rain lately!) as well as sea air so I like to try and use this to cleanse my fair from any harsh condition my skin endures. I hope to invest in a bigger bottle once I'm done with the smaller option, well worth a try!

Until next time.....

Sarah x

My experience with Enbrel....

It is that time again, another installment. If you have missed my previous posts, I have gone into detail about my experience with topical ointments, tonsilectomy, methotrexate and phototheraphy. Today I talk about my most negative experience to date, which happened at the start of 2015...

In my other post regarding Methotrexate, I ended up feeling very ill while taking a higher dosage in December 2014, while also developing psoriatic arthritis in my elbow earlier that year also. At this time, I also found my skin to be bumpy around the back of my thighs leading me to think maybe my Psoriasis was becoming active again but it wasn't happening at a rapid rate, thankfully. I was always given the options of changing to biologics, but was put off at the thought of having to inject myself. To reference Psoriasis.org, Biologics :- "target specific parts of the immune system. The biologics used to treat psoriatic disease block the action of a specific type of immune cell called a T cell, or block proteins in the immune system, such as tumor necrosis factor-alpha (TNF-alpha), interleukin 17-A, or interleukins 12 and 23. These cells and proteins all play a major role in developing psoriasis and psoriatic arthritis."

Enbrel (etanercept) was prescribed to me in January 2015. With Enbrel, you have a nurse assigned to you who comes to your house and helps to teach you how to inject it yourself. Thursday January 8th was going to be the start date and I was to try 50mg, which comes in pen form (myclic pen pictured above). The injection areas to choose from are either the thighs or stomach, I found the thighs to be the area of choice, alternating between left and right each week. To use the pen, the cap is taken off, and the pen is place on the top of the thigh, pushing down so the guard is pushed back and once you're ready the button is pushed releasing the needle. The first time I did it, I did it wrong as the nurse had confused me saying to count to 10, but I was supposed to wait for the second click (which they say is 10 seconds, sounding that it is been dispensed). Due to my mistake, I didn't get a full dose, but I'd know better for next time, being a weeks time. 

Thursday January 15th, My nurse was unable to attend my home. I remember it the weather had been quite bad around that time, including snowfall in higher areas. I managed to inject myself, after about a half hour of building myself up, it was a case of "F**k it! *click*". I did find the pen to be painful. The nurse had asked if I would prefer to use a syringe which I felt sick at the thought of, but she made a good point that with the syringe you have more control. Once you click the button on the pen, its a case of grin and bare it. That same evening I found the back of my thighs and my scalp to be very itchy. As I've said above, it did have a few bumps on the back of my thighs, which felt more like pimples than anything else and didn't really bother me until then. 

Monday Jan. 19th, and I woke up feeling horrible, I had symptoms of a sore throat, runny nose, feeling cold and headaches at night. These symptoms persisted as the week went on and due to my next injection due on Thursday it was decided I would give it a miss. It should be noted that if you do feel sick while on a biologic and are due to take it around that time, it is best to not take it, as you could become more ill. My throat had worsened by Thursday and I felt congested in my nose.

I was sure to keep track of my symptoms and injections in my Enbrel diary. I also kept track of my psoriasis, which by Saturday 24th had worsened. It was now showing on my scalp, legs, back, stomach and my face. I was also still very congested at this stage. The following week I had noticed red patches on my thighs where I had injected. I contacted my nurse who had said to keep an eye on them. They were slightly red and a small bit raised but I was told nothing to worry about. It was now Thursday the 29th and as I was still sick, I was missing another injection, making it two weeks in a row without Enbrel. 

Monday Feb. 2nd which was a visit to my Rheumatologist who had prescribed Enbrel, for a month review. While in the last month, my joints had felt great, my skin was going the opposite way. He thought maybe the dosage was too much to start on so halved my dose to 25mg every week and to take a low dose of Methotrexate to help make it more effective.

I started my new routine of 25mg of Enbrel the following Monday, the 9th. The nurse had made the visit to help show me how to inject with a pre-filled syringe which is how 25mg comes. She got to see how back my skin had become and had supported my decision to go back to my dermatologist about my worsening skin and the possibility of starting phototherapy again. I took 10mg of MTX the same day, which was followed by 10mg of folic acid two days later.

I did find it strange injected with a syringe, but I managed to do so the second week with no supervision. I managed to get an appointment with my Dermatologist Feb. 17th and he looked over my skin and agreed with my thoughts on light treatment and I signed the appropriate forms and was book in for Feb. 23rd. I had 3 doses of 25mg of Enbrel in total before I was back to my rheumatologist for another review, and it was decided Enbrel was not beneficial to me and so it was stopped.

I was very unfortunate that Enbrel did more harm than good for me as I have heard and seen stories of how it has helped others with psoriasis and/or psoriatic arthritis. My Psoriasis had gotten so bad over my entire body, especially on my face which at times I felt I had to cover with makeup to avoid stares which were quite hurtful. I went on to continue phototherapy until May 8th 2015. I found it to be an expensive year as phototherapy 3 times a week at €30 a time which may not have been necessary had I not been prescribed Enbrel. Add in he cost of doctors visits on top of that and the fact I wasn't working. It probably seems like i'm cursing Enbrel and in a way, it was a negative experience but it did prepare me in other ways, such as injecting as I believe the nurse service is not available with some biologics.

As I always say, what happens to one might not happen to another and I know people whose lives have been made better by Enbrel. Its just a case of finding what works individually.

Did you have a similar experience? or what do you find works for you? let me know below.

Until next time....

Sarah x

Haul: Bioderma....

I decided to do something different today, a haul of recent skincare products. I always want to try and do whats best for my skin, even if I don't succeed in doing so. Recently the French skincare company Bioderma have launched in Ireland and I have been intrigued with all the hype about it lately so I decided to purchase a few products to try it out for myself.

 I was immediately drawn to some products that were developed for sensitive skin as I've said before, its hard to find a good skincare routine for myself especially for my face as I find a lot of things seem to break me out. I hope to do a future post reviewing these items properly but for now, here's what I picked up;

 (Bioderma BB Cream in Light)

I've heard alot about the Bioderma BB Cream, both good and bad. It only comes in one shade - Light, which tend to be too dark for fairer complexions. The product contains SPF 30 and claims to "Even out the complexion. Moisturises and soothes". It is aimed towards sensitive skin which is prone to rosacea. While I don't have rosacea, I do tend to get a lot of redness around my nose and cheeks which can sometimes show through in some BB creams/ foundations. I did give this a quick try when I bought it, i prepped and primed my skin and applied it using a foundation brush. I don't know if my skin was prepped enough or if I should use the method of a makeup sponge but it tend to cake on my cheeks. I'm not writing it off just yet as the colour is quite good with my natural tan right now so I will update when I give it a second try. This retails at €17.50, while it isn't the most expensive, I did splurge a bit on this so I hope it will be worth it.

 (Bioderma Miceller Water)

This is one of the first Bioderma products I had heard people raving about, the Bioderma Miceller solution. This can be used as a make up remover or a cleanser. I had used the Garnier and Nivea sensitive miceller waters and had found them to leave my face feeling hot as though it was causing a reaction so I stopped using them. I'm looking forward to trying this out, but I will be trying a patch test first to be safe. Its says "Cleanses, removes make-up and soothes sensitive skin. Excellent tolerance. Non-rinse. Paraben free. Hypoallergenic." As I have said before, I don't use make-up daily, only for nights out/ special occasions so I look forward to seeing how well this will remove my make-up. The 100ml bottle pictured retails at €5.50. I decided to the smaller option and if I like it, I'll look into purchase the bigger bottle.

 

(Bioderma Moisturising Stick)

I picked up this lip balm as something extra to try out as I always seem to pick up new lip products to try out. It is for Damaged and dehydrated lips, which I have had a problem with lately and I wanted to see if this might be as good as my trusty Blistex relief cream, and to be honest it is! I have been using it for about a week now and find it so hydrating on the lips and leaves them feeling lovely and soft with no stickiness from the product. Only downside is there is no SPF, but its not a major flaw. It cost €3.50 which seems to be the typical price for lip products these days. Well worth trying.

I will be sure to do more in depth reviews when I have tried these products further. Have you tried their products? Let me know which are your favourite!

Until next time....

Sarah x 

My experience with Phototherapy (light treatment).....

Welcome back again to another installment. Today I'm going to discuss Phototherapy, also known as light treatment or UVB. I have gone into further detail about this in past blog posts, on weekly to daily basis so this is going to be a summery of my experience and just explaining what phototherapy is.

Phototherapy involves exposing the skin to ultraviolet light on a regular basis and under medical supervision, in my case, in a hospital. This is very different to tanning beds which are advised against using for skin conditions as it is not beneficial and does more harm than good. UVB (ultraviolet B) is present in natural sunlight and slows the growth of affected skin cells, therefore helping psoriasis.

I have been through this treatment three times, in 2011, 2013 and 2015. If you'd like to go back to my first post on the intial assessment where I go into detail about what happens for the first session, check it out by clicking here. 

My first and second time doing the treatment were very beneficial, to the point that my skin cleared, or was close to clearing. I do wonder if the more you go for the treatment, the less effective it become. My third time doing the treatment, was when I had flared due to Enbrel (which will be in more detail in the next installment). It seemed like my skin was more stubborn, and a mixture of trying new biologics had maybe played a part in it also. 

As I came to the end of my third time, which was only the start of May this year, I still wasn't happy with my skin. It had progressed, but not to the extent it had done in the past. I would really recommend this treatment for anyone with very bad psoriasis, but not to be doing so too often. My doctor said after a few hundred session that it would be considered a higher risk to skin cancer. Each time I had only done 20 - 28 sessions at most so I don't have to worry just yet.

Another thing about this treatment is that once the days session is done, it is very important to try and avoid the sun for the remainder of the day and use sun cream when outside. Reason being, at each session you are getting your days dosage of sunlight recommended.

Any questions, or anything you feel I should go into more detail about, leave it in the comments below.

Until next time....

The "Me Time" Tag....

Back with another tag! This time the "Me Time" tag. Lets face it, we all need some 'Me Time', especially since Psoriasis is linked to stress, we all need to do little things to unwind, so here are mine....

What do you watch/read during me time?Reading usually consists of interesting or sad stories online. As for watching, I do love when Game of Thrones is in season and would catch up on a weekly basis. Lately its been all about Orange is the new black since it is back again. Usually watch it curled up in bed with himself.

What do you wear during me time?
PJs! with a comfy bathrobe, more times than not. Otherwise it would be a tshirt and tracksuit bottoms. Can't forget the slippers either :)

What are your me time beauty products?
I'm not one for using too many beauty products, but I am going to try and get into a proper facial skincare routine soon. I just like my hot shower, pampering my hair with a nice hair mask and hydrating my skin with E45. My skin tends to be very sensitive so it is hard to find a face mask that wouldn't break me out unfortunately, the search continues!

Current favourite nail polish?
Really liking NYC's Park Ave (246) its a nice mink/light brownish kind of colour. Not too dark for the summer.

What do you eat/drink during me time?
Probably be a takeaway, or a bit of junk food. Maltesers especially...yum!


Current favourite candle?
Anything Vanilla scented!

Do you ever have outdoor me time?Sometimes its nice to walk the dog on my own. I live in the countryside so it is quite calm and peaceful compared to the town or city which is nice to explore especially through the seasons and see the changes around. Also a trip to a local beach can be rather relaxing, just sitting watching the waves.

Would you ever go see a movie alone?Its something I haven't done and I'm not sure I would unless I couldn't convince someone to see a movie I really wanted to see. I think the company makes the trip a better experience too. My friend and I used to always go most weeks and it was more like a catch up and a laugh.

Favourite online shop?
Clothing and accessory-wise, I love New Look and Forever 21. I think Ebay is great for finding somethings that may be hard to find elsewhere or random gadgets.




Anything else to add?
Sometimes listening to music, a song that reminds me of good times, going for a drive or watching a movie on the couch are all other ways I get to relax. I find myself not having much time these days with work but I do look forward to the simple things on days off :)

Lastly, any bloggers that want to do this tag, I tag everyone. I found this tag randomly, so someone else might do also. If not a blogger, why not pick a few questions from above and give your answers in the comments below.

Until next time....

Sarah x

My experience with Methotrexate

Welcome back again to the second installment of this series, this time about my experience with Methotrexate...

In 2006, the same year I had gone through the tonsillectomy, I had noticed my right knee was very swollen to the point that it was double the size of my left knee. When I had a check up with my dermatologist I had asked about my knee, he then informed me that Psoriatic arthritis is a possibility due to having Psoriasis and he refered me to a rheumatologist to look into it further.

I believe it was around September of the same year that I first saw another new doctor. He checked out my knee and said it was fluid after building up which is why is was that size. He then drained the fluid and showed me it in a cup. It was yellowish in colour 'like Heineken' my doctor proclaimed. I was also given any anti-inflammatory injection in my knee in the hope it would keep it calm.

I saw my doctor every few months and had fluid drained a few times, thankfully not to the extent of my first visit. He gave me a leaflet about Methotrexate (MTX) a tablet (also available in injection form nowadays) which was known to be good for types of Arthritis. I came to the decision I would try it in the hope it would help. I was then sent for a chest X-ray which has to be done upon starting MTX, as well as regular blood tests to keep a check on liver functions, as it can have an effect on the liver. I started on a low dose of 5mg, followed by folic acid two days later. The dosage was increased as the weeks went on, to 15mg, if I remember correctly. MTX can be disruptive to the stomach and I did experience a few stomach aches but it was worth it to help my knees.

I was still on MTX up until Decemeber 2014. Over the years I have had the dosage switched up and down, depending on how bad/ or well behaved my knees were. The highest I was on was 25mg, which did not agree with me back in December and ultimately was the final straw in changing to a biologic which my rheumatologist had always offered as an alternative.

Another reason for going off MTX was due to developing psoriatic arthritis in my left knee and also last year, in my right elbow. I visited my doctor every two to three months and was usually given a steroid injection to help with any inflammation which may have been happening at the time.

I found that MTX was effective for a while, as I was on it long enough but I just found as the years went on I needed to try something different. I think it is a good option to start off on if you are new to psoriatic arthritis and are unsure of the biologics which are usually injections. I have heard other peoples experience with this drug that they could not that it as it would make them feel so ill. Also it is not recommended to drink alcohol while on it due to the possibility of it having an affect on liver function, which is another thing that turns people off. As stated above, it is now available in injection form, something that wasn't an option when I started and I have heard some people say they prefer this method. 

Its all down to personal preference and we need to remember that even if one thing doesn't work for you but works for someone else, there are plenty of options out there. That is something that will ring through when I talk about Enbrel.

Again, any questions you might have about MTX, don't hesitate to ask.

Until next time....

Sarah x

Holiday post: Mallorca....

Hope everyone is well. I thought it would be nice to share some of my holiday stories and pictures here. I certainly took my own advice when it came to suncare and thankfully didn't managed to get burned which seems like a first for me. Two days before the holiday I took my second Stelara injection and didn't feel any side effects bar a scratchy throat, which didn't last too long.

Myself and my boyfriend booked a week away in Mallorca in June as we were invited to a family wedding there and decided we'd make a holiday out of it. We booked back in January and got a good deal on flights and hotel, travel from Palma airport to Santa Ponsa only cost €40 each way which wasn't too bad.

Our flight was 6am on a Monday morning, which was found was the best way to go as we had a full first day of exploring. we found that we were less than a five minute walk from the beach and had plenty of choice nearby with pubs and restaurants. We strolled around and found our bearings. Being the first day and still being self conscious, i wore 3/4 shorts, so as to cover up most of my psoriasis.

We had a small pool at the hotel with sun loungers. We found it to be quiet there the first few days so did spend a bit of time sunning ourselves here. The first day, I sat on the side and dipped my legs in. I haven't been in a swimming pool in about 15 years and so was a little cautious as to how it might affect my skin. On top of that, I should mention I can't swim! Luckily the pool was shallow enough.

 

(Our pool shaded by the neighbouring hotel on the evenings)

From the second day on, it was all about shorts. I forgot about what people could see on my skin and thought about the positives the sun would have on my skin. I even threw on a swimsuit and joyed himself in the pool. It felt good to be out of my comfort zone and since then I've been thinking about getting swimming lessons to conquer my fear.

We spent most evenings eating out, which is cheaper compared to home. It was nice to experience different restaurants, especially in such beautiful settings near the beach.

Everytime I did head out into the sunshine, I used my factor 50, topping it up as the day went on. In the evenings it was a bit cooler so there wasn't a need. Later in the week, I switched to factor 30. After using the pool, I would always shower and use moisturiser especially as the chlorine in the water is quite drying on the skin. I also managed to keep up a usual twice daily moisturising routine while there.

We went to a wedding on the Thursday in beautiful surroundings, all of which was outside bar the disco. It was lovely to catch up with some family I had not seen in years. We all organised to meet up again before the holiday was over.

Overall it was really enjoyable and relaxing, a nice break from the daily routine of work. We are already hoping to go back again next year, hopefully for two weeks. 

 (Only slight pink colouration left on my skin after the week of sun :O)

It was amazing to see my skin go from bad to almost completely clear in the space of a week, i could run my hand over my skin and feel complete smoothness, its a feeling I had missed. It is two weeks since we returned and two days after I had already felt little spots coming back on my skin, I think it is missing the sun! I had a check up with my rheumatologist last week who said it would be a combination of climate change but also being relaxed on holiday and going back into everyday life...after all I did return to work the day after I got back.

I can only hope the sun will make a return to Ireland, it supposed to be good during the week so the shorts will make a return appearance so that I can try and get some natural goodness on my skin.

Hope the sun shines wherever you are. Until next time....

Sarah x