If you didn't know, now you do! Today, October 29th is World Psoriasis day. A day celebrated worldwide by many a Psoriasis sufferer, to educate others, and also to acknowledge how far treatments have come over the years with so many options now available. I know Psoriasis is something, if we all could choose, we wouldn't want to have it. But there are positives to come from it and for me a bit part of that was how much of a community you will find from fellow itchys. People are so eager to educate as well as share their own experiences and advise when times are tough. For myself, the Psoriasis Ireland group on Facebook has been so helpful and so welcoming, be it to rant or rave, you'll always find someone who will set you on the right path. There are plenty of forums out their also, as well as other Facebook pages/groups from different countries. I want to end this by sharing a video by a beautiful little girl named Pearl, who is an inspiration in speaking out about how it feels to live with Psoriasis and deal with it from a young age. I wish I had her confidence. When I developed it at age 17, it was the awkward years, in high school and a lot of focus on how you look. I wish I was a brave as this girl back then, thankfully I have grown a lot as a person since :)
I must apologise for the lack of posts lately, there has been a few bits going on in my personal life that I have had to deal with, so I chose to take a break from blogging for a while. While one issue I was dealing with is something I hope to deal with in a future post, it's not exactly psoriasis related, but stress related....so in a way I guess it is psoriasis related. To update on my ongoing treatment, I took my 45mg Stelara as usual in August and had a return visit to my Rheum in September. He was happy with my progress, but unfortunately my arthritis was active, in my knee, elbow (which doesn't straightened properly these days) and now my ankle. My ankle had been giving me trouble for a while, and I found an ankle support did help when at work. When I bought new runners to replace my old, falling apart Golas, I found my ankle to be better supported. With my PsA being active, but my skin coming along well, my rheum decided to up the dosage from 45mg (1 injection) to 90mg (2 injections). I was prescribed one injection to boost me up to 90mg from my old dosage a month earlier. I have been feeling great, my joints feel a lot better in that I have been doing more things that I couldn't do as well in about a year or so. My skin has had its ups and downs, mostly on my right leg but still nowhere near my worst flares. I am due back to my rheum in November, to see how I'm finding the higher dose. I am due to take my next 90mg on Nov. 21st, all going well. In the mean time I hope to post a bit more often as I have had a few ideas during my blog break. If you have an suggestions on any topics or issues you would like to see covered, leave it in the comments below :) Until next time..... Sarah x
